On Wednesday 11/29 we had an emergency trip to the cardiologist due to shortness of breath. I’m not sure how we got a same day appointment, but I was pretty impressed. The cardiologist was sure that it was due to fluid retention and started Billy back on lasix. Billy lost almost 10 pounds in 3 days. Talked to the cardiologist on the phone that Friday and he told us just to keep monitoring his weight and if he gained more than 3 pounds in a day or 5 pounds in a week to call them. Other wise they would see him back on the 27th.
He slowly gained the weight back over the week, but would then lose it again. I had left a message with the cardiologist on Friday (12/8) morning because he was back down to less than the 5 pound gain. The nurse said she would let the doctor know and call me back.
But I never got a chance to talk to the doctor about what was going on. I got a text from Billy that he was having trouble breathing. I asked if he wanted to come home, and he said he was going to try to sit down and see if that worked.
Then he sent me a message about 30 minutes later asking me to come get him to take him to the ER. That he wasn’t getting any better, and it was scaring him.
We got to the ER, got him checked in, and then we waited. And waited. And waited. Finally they called him back. To Express Care! Are you kidding me?!?!? He’s a heart patient that can’t breathe, and you stick him in the equivalent to urgent care. There’s not even heart monitors in this area! So while they ordered a chest xray on him, I asked why he was in this section. They assumed he just had a cold, and this is the section that all the colds come too.
ARE YOU KIDDING ME? I told the woman, I know the difference between a cold and shortness of breath. So after observing him breathing, they realize that no he doesn’t have a cold, and that he needs to go to the main er.
As soon as he’s in a room there, they come in and tell us that he’s being admitted, and that the on call cardiologist is his cardiologist. Thank you. Someone that knows that I know my stuff and that I’m not over reacting.
The ER doctor tells us that when the cardiologist put him back on the lasix, the dosage was too high and that it removed too much fluid so he was extremely dehydrated. On top of that his creatinine level was 3.3. A week ago it was 1.1. When I asked about the weight loss and then the weight gain, she couldn’t give me an answer, but that this is what was going on and it was the cardiologist fault.
Friday night, his cardiologist came in to see him. No. Its not from the lasix, and just like I said, if it was from the lasix, he wouldn’t have gained the weight back. They were worried about his kidneys, and trying to figure out what was going on with them. They started him on IV fluids, very slowly. 12 hours to empty 1 bag.
Friday night the nurse told him he was NPO (no food or drink). They were going to do a heart cath in the morning.
So Saturday the cardiologist comes in around 9:30 and asks how he’s eating and drinking. Billy was like, they won’t let me eat because of the heart cath. Cardiologist was a little upset because the heart cath would be Monday morning. So he left to go tell the nurse to find poor Billy some food.
They still didn’t know what was going on, and waiting for his labs to come back.
The primary doctor for the floor came in around 3. Creatinine is down a little. So another 12 hours of fluids and more blood tests.
We didn’t see the cardiologist on Sunday, but primary doctor told us that the creatinine was down to a 2.3. Great news. Still clueless as to what’s going on. But now he has a UTI caused by whatever is going on with his kidneys.
Sunday night, NPO again for heart cath in the morning.
Monday morning creatinine is in the normal range at 1.3. No heart cath! Keeping him for another day to observe him.
Tuesday morning he got to come home. After talking to several doctors over the weekend, they came to the conclusion that this wasn’t heart related but they suspect that he has Atherosclerosis Renal Artery Stenosis, or narrowing of the main artery going into the kidneys.
So now he has testing in his future to officially diagnosed him with this and then figure out treatment plan.
I pray 2018 is a little calmer for my family.